What a long strange trip it still is – aging and the power of my cohousing community

Auntie Jeannie is standing on the right end next to my mother. Alison is sitting second from the right, Alison's sister Leslie is being held by Auntie Elsie.

Auntie Jeannie is standing on the right end next to my mother. Alison is sitting second from the right, Alison’s sister Leslie is being held by Auntie Elsie.

My 82 year old Uncle Tom fell after getting off a four-wheeler. He was in the hospital for a short period of time. My cousin Margo called to let me know Tom died. I stopped at the hospital and saw him and had a chance to catch up with my cousins. My condolences go out to Margo, Kathy and Bobbi – they are all pictured in the photo on the left.

Margo’s phone call reminded me about a story from a few years ago.

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October 29, 2016 – I got a call from my cousin, Alison, yesterday. These days, whenever relatives call, there’s generally some sort of family emergency. This time, Alison told me her mother – my Auntie Jeannie – had passed away. She had a stroke while sleeping and didn’t wake up. My condolences go out to my cousins Alison and Leslie and her sisters Carol Lou and Janice.

I’ve been attending funerals lately. Last week, it was for Eastern Shoshone tribal elder and one of my mentors Starr Weed in Fort Washakie.

It was my first open casket wake. I don’t know what I expected, but it was solemn and heart breaking. One of Starr’s grandsons, Layha Spoonhunter, was one of my Wind River Tribal College film students. His class project was an oral history of Starr Weed. I felt for him and his mom, Wilma, who is married to my former boss, Harvey, and his aunt Elaine who organizes the Gift of the Waters Pageant in Thermopolis.

A month or so ago, my Uncle Rich died. He had quite a few home health care workers supporting him after he returned from the hospital. He was a 442nd war veteran and in Army Intelligence. He was too small in stature for combat. I also learned after he died, my Aunt Sadako was moved to an assisted living place in Cheyenne.

I live in the Silver Sage Village senior cohousing community in North Boulder. There have been murmurs about it, but just recently the community began discussing “aging in community” which has been on my mind quite a bit, lately.

I’m making a documentary movie about my and my neighbors’ experiences of growing old in cohousing and their thoughts about the future. I’m also helping produce a national conference on the topic that will be held next year May 19 to 21 in Salt Lake City.

My movie won’t be anything earth shattering, but hopefully will give others wanting to start up an intentional community some insight into what to expect. These discussions are about the first ones we’ve had in the five years I’ve been living at Silver Sage Village where the topic has been about something more substantive than maintaining the buildings.

A bunch of people are reading “Being Mortal” by a doctor named Atul Gawande. His basic premise is that modern medicine is good about keeping people alive, while not knowing when it’s time to allow us to die not in a hospital but at home.

Gawande says that in the past, 80 percent of people used to die at home and 20 percent died in a hospital or medical facility. Now that number is reversed with 80 percent dying in a hospital and 20 percent dying at home.

Back to Auntie Jeannie.

I also learned that at 77, she was one of the primary care givers to my Auntie Elsie, well into her 90s. A few months ago, she broke her hip and Jeannie got her settled into a rehab / hospice center as well as helping Sadako get settled into her assisted living apartment. I surmise that what happened was Uncle Rich’s home care workers also did more for Sadako than anyone realized.

I imagine with all this care giving Jeannie was a bit stressed out.

Elders providing care for other elders is becoming common place anymore and a problem.

I can see myself in that boat particularly since my immediate family is strewn all over the place with their own lives and issues and I have no kids.

Like in Jeannie’s case, the work takes more out of the care giver than the patient.

Cohousing is a way to spread some of the load.

Jeannie was married to my Uncle Jake who was the youngest son on my dad’s side that had 13 total kids. It was a very strong extended family and everything revolved around my grand parents house.

Mainly during the summers, everyone would gather various places in Cheyenne and along with the rest of the Japanese community. On Memorial Day there were big picnics and on the 4th of July we all went out to Jeannie’s parents who lived out in the country and blasted off fireworks.

Back then, all the cousins were close, and all the aunts and uncles were close but there was a big diaspora after the grand parents died. We all became adults, had our own lives and lost the closeness we shared as children. Social media has helped keep us connected, but it’s still not the same as it was.

How do more seniors get engaged as caregivers for one another?

I had a brush with death and had a visit from the Ghost of Christmases Yet to Come and got a glimpse into my future. What if I couldn’t walk, feed myself, or breathe on my own, flat on my back in a hospital bed?

I can tell you it was lonely.

The hospital was 20 miles away and the rehab place 40 miles away in Denver. I didn’t broadcast that I was laid up but a few neighbors and friends managed to find out and dropped by. I thought it would be a good time to catch up on some editing.

I didn’t realize how doped up I was. A guy can only watch so many “Pawn Stars” reruns before boredom sets in.

I’m happy that I got a second chance to do things differently the next time around. I am grateful to be living at a place like Silver Sage Village. At the urging of Diana Helzer, we sold a place nearby with too many stairs in favor of Silver Sage Village that is on the ground floor with no steps and is fully accessible.

I really didn’t know much of anything about cohousing but am lucky to have neighbors who helped out by bringing by food and helping Diana with some of the care giving like transport in the dead of winter.

The downside of living in cohousing is antithetical to any care giving.

There are many conflicts about the day – to – day management of the place that arise and escalate, some cause hard feelings, but that’s part of life anywhere and shows how fragile community living can be among a whole variety of personality types. The differences seem more pronounced since everyone also is trying to get along.

In my experience, those sorts of relationships have been more work related, but much of living in cohousing is work related and I’ve had to learn how to separate out my personal life here from my business life here.

When I returned to Silver Sage Village after six weeks of hospital and rehab stints, I don’t know how it happened, but neighbors brought by meals and offers of help. I don’t know if neighborliness can be “organized” but however it came about was greatly appreciated. That, along with the layout of the fully accessible condo, was important in my continuing recovery.

It takes a village to raise a child but also takes a village to move an elder towards the end of life.

I don’t expect my neighbors to help me into the shower, or wipe my butt, but I hope they’ll continue to mostly be around.

Gawande talks about the importance of hospice that helps a person be comfortable and provides ways to navigate life.

Do I want my friends and family to be hovering over me out of some sort of self serving sense of duty when I’m delirious and out of it? Is that quality time to be with someone at the last breath?

I’ve put myself into self-imposed hospice now while I still have plenty of breaths left and want to be comfortable in my house living life to it’s fullest. I’d rather be around family and friends while we still have our wits about us.

Here I thought I was out of the event planning business.

Look out for the “Getting the Band Back Together Tour” truckin’ into a town year you – the Cousins Reunion; Cheyenne, Gillette, Lander, Boulder and points in between.

What a long strange trip it still is!

The ‘Aging Gratefully’ in cohousing film series now streaming – rent or buy

alan mri machine

Book a personal appearance by “Aging Gratefully: The Power of Good Health and Good Neighbors” filmmaker Alan O’Hashi who will screen the film and facilitate a discussion. $$$ is deductible and negotiable!

The “Aging Gratefully in Cohousing” documentary series is now streaming. There are currently three films related to growing old in an intentional community.

You can also book a screening for your community or general audience by obtaining a screening license for a nominal donation.

To purchase or rent, click on the Video On Demand (VOD) links below:

“Aging Gratefully: The Power of Good Health and Good Neighbors” (Run Time: 50min – 2017) Filmmaker and Silver Sage Village senior cohousing resident Alan O’Hashi is mostly recovered from his death bed illness in 2013.

DSCN2046 As a result of that experience he’s become much more aware of his health. One of his neighbors circulated information about a research study at the University of Colorado about the effects of exercise on brain health.

Curious, he was selected to be a research subject. To measure success, one of the criteria is emotional health and strength of relationship building.

Does living in a cohousing community be an added benefit to physical exercise? He interviewed six residents of newly-formed Germantown Commons to find out their motivations to living in cohousing and whether living intentionally with neighbors was a positive experience and what physical activities happen in a group setting.

Germantown Commons featured residents:

  • Essie Sappenfield (retired)
  • Doug Luckes (still working)
  • Suzanne Glasgow (still working)
  • Sarah Carroll (single mom)
  • Chris Corby (still working)
  • Ginger Lange (retired)
  • Vicki Metzgar (retired)

Also Appearing:

  • Bryan Bowen, AIA (Caddis Architects)
  • Angela Bryan PhD ( Principal Investigator CU FORCE study)
IMG_7366

Book a personal appearance by “Aging Gratefully: The Power of Culture and Traditions” filmmaker Alan O’Hashi who will screen the film and facilitate a discussion about his experiences. $$$ is deductible and negotiable.

“Aging Gratefully: The Power of Culture and Traditions” (Run Time: 30 min – 2017) My latest trek took me to South Africa where I’m investigating a third documentary in the Aging Gratefully series.

There’s an intentional community being formed in the Town of Memel and the Township of Zamani in the South African Free State Province by a friend and colleague, Steven Ablondi and his wife Cindy Burns. Steve and I serve on the National Cohousing Association board of directors.

I tagged along with the Memel Global Community architect and my across the street neighbor Bryan Bowen and a couple of his crew, Jamison and Molly. Bryan lives in the Wild Sage Cohousing community in Boulder.

I embedded myself with a local buy named Shakes in the Black African community and even though it was only for a couple days, I gained quite a bit of insight into the cultural dynamics, which are not unlike those I encounter among my Northern Arapaho tribal member friends.

As this story develops, how Native American tribes could incorporate cohousing concepts into its growing housing demand will also be investigated. There are generations-long traditional tribal cultures that have a norm about multi-generational care for elders. Does it it makes any sense to form intentional communities around these customs?

This is a 30 minutes pilot of my visit shot mainly on an iPhone 6s and I’m not sure if anything will come of this story. What do you think?

Memel Global Community featured denizens:

  • Steven Ablondi (cofounder)
  • Bryan Bowen (Caddis Architects)
  • Shakes Mafanela (SheWins sports coordinator)
  • Marley Hauser (SheWins volunteer)
  • Pieter Lombaard (Binary Film Works)
alan shoveling

Book a personal appearance by “Aging Gratefully: The Power of Community” filmmaker Alan O’Hashi who will screen the film and facilitate a discussion about his experiences. $$$ is deductible and negotiable!

“Aging Gratefully: The Power of Community” (Run Time: 51min – 2015) In the first of the series, what if 25 senior citizens decided to grow old together in a cohousing community? Learn about their illness, angst, and fun times while owning and maintaining 16 condos, a common house and community gardens.

Cohousing is a collaborative living arrangement. Residents own their own homes, live private lives but share in the ownership and upkeep of common spaces such the garden and common house.

It’s a challenging way to live, but living together more intentionally is a hedge against being alone and isolated through the twilight years of life.

Filmmaker and Silver Sage Village resident Alan O’Hashi was on his death bed in December 2013. Following a 6 week hospital and rehab stay and a month of home confinement, he joined a yoga community to regain his strength, but learned more about himself than just getting healthier.

Through his reflections, he recounts his continuing recovery and weaves those experiences with the perspectives of neighbors with Parkinson’s Disease, Alzheimer’s Disease and those who find themselves in supportive neighborly care giving roles.

Cohousing pioneers Katie McCamant and Chuck Durrett and gerontologist Anne Glass phD offer their perspectives about senior cohousing living.

jim brownie bbqerSilver Sage Village featured residents:

  • Lindy Cook (nurse)
  • John Huyler (facilitator)
  • Henry and Jean Kroll (retired from San Francisco)
  • Dan Knifong (retired professor)
  • Jim Leach (Silver Sage Village developer)
  • Margaret Porter (retired federal government)

Also Appearing:

  • Anne Glass phD (University of North Carolina Wilmington Gerontology Program Coordinator)
  • Chuck Durrett AIA (McCamant and Durrett Architects)
  • Katie McCamant (The Cohousing Company)
  • Larissa Ortiz (teacher The Little Yoga Studio)

The Denver Post published a story prior to “Aging Gratefully” production beginning and KGNU radio did a story about it post production

If you have questions about purchase, rental or booking a screening, email Boulder Community Media

Would you invite your future self out for lunch?

I must be around two years old. My maternal grand parents visited on Christmas. My grandfather lived to be 103.

I must be around two years old. My maternal grand parents visited on Christmas. My grandfather lived to be 103.

I subscribe to a blog called the Gero-Punk Project and the query in a recent post was about futurism and asking readers, such as myself, to look forward.

“Would I go out to lunch with my future older self?” There were a bunch of questions, but I narrowed and modified them down to these:

How much older are you than you are now and how far into deep old age are you able to travel in your imagination? When I was laid up in 2013 and couldn’t walk, feed myself or wipe my butt, I thought this is what I would be like when I was ready for hospice care, hoping that would be in my late 80s or 90s. I have a family history of longevity and I don’t envision myself in that bad of shape. If I were to ask my future self out to lunch, I’d likely be in my 7os or 80s. A friend of mine who lives in Tucson in his 80s is quite active, works and contributes to the community. I see myself like him – he’s very computer and tech savvy, is still able to drive and get himself around. I can see myself in that way 20 years from now. Ten years from now is easier to envision. I see people around my neighborhood in their 70s and they are quite vibrant and keeping up with current trends. My mom died at 77 and I can see myself being like her and living actively up until my last breath. She lived long but died short of a massive heart attack in her sleep.

When you try to imagine your future older self, how do you feel? What sensations do experience in your body? Since resurrecting myself back to relative good health, I’ve become much more aware of my entire body, more so than when I was younger. I notice little things – aches and pains, itches and scratches more so than in the past. I lost quite a bit of weight – 37 pounds – that I want to keep much of it off (I’ve gained back 20) and still getting stronger from when I was bed ridden. The acid test was the Bolder Boulder 10K road race three months after being released from the hospital, which was a success. I had to take a swig of oxygen going up the last Folsom Hill into the Stadium. One of my neighbors in her 90s managed to finish the Bolder Boulder up until the year she died.

When you imagine your future older self, what are your surroundings? I’m thinking I won’t be needing any assisted living 10 years from now and probably still living where I am at Silver Sage. Twenty years from now, I hope to still be living independently. Even though living in “community” can be a big pain in the butt, it is nice to have neighbors around. I suspect the surroundings are going to change since I’m one of the youngest people here and in 10 years and for sure in 20 years, there will likely be some deaths and people moving out to assisted living, nursing homes or in with relatives and new, younger people moving into the ‘hood.

What are some ways in which you can experience enjoyment, freedom, and passion … in your aging body? I don’t want to out-live my peers, which is starting to happen. I’m making an effort to befriend men and women who are now in their 30s and 40s. I’ll live as full as I can. I tried shooting some baskets a couple summers ago with a kid, which was a cue for me to get stronger and get more flexible, which is why I started yoga class at The Little Yoga Studio. There aren’t a lot of men who attend, I’m pretty sure I’m the oldest person. I made a vow to myself not to end up being the old guy in the club. I could use some passion in my life as I get older. Time is getting away!

Who are your co-creatures in later life? With whom do you spend time and enjoy life? Over the years, I’ve accumulated a lot of acquaintances and able to stay in touch with many of them through social media. I’ve made a point of not befriending many of my cohousing neighbors. In cohousing, other than basic neighborliness,  my main interaction among everyone is conducting business. That will change as households age and there’s more reliance on a property manager, which is a transition that’s happening now. I don’t have any family of my own. I have a domestic partner, but she’s several years older than me and has her own family. It’s hard to say if I’ll still be in that fold if something happens to her. My cousins are scattered all around the place. They all have their own lives elsewhere and I’m not counting on them to pay attention to my well being later in life. I come in and out of a couple friends’ lives who would be a good companions — but life is about timing.

What is the quality of mind — the form of consciousness — that you bring to your aging experience? Cable TV must be the domain of old people. All the ads are for arthritis, diabetes, and Alzheimers. I’m finding that I don’t remember proper names like I did. I still remember faces and details about people but remember a name on the spot? Forget about it, the name will eventually come to me though. I hear that if you play word games that helps keep the mind sharp, but I don’t think that slows down the aging process. Most places I go, I find that I’m the oldest person. I don’t know if others view me like that though, but I notice. I visit a friends and neighbors at the rehab center over in the nearby rehab center. It was one of those “one size fits all” places with basic physical rehab to long term nursing care in the same building. It was eye opening to see how people end up – unaware, wheel chair bound and just waiting it out. I hope I don’t make it that long.

What do you see as your purpose in your later years? When my dad retired many years ago and I was still living in Lander, Wyoming and “commuting” back and forth to Boulder working on a project for the Northern Arapaho Tribe, I learned about a guy named Rabbi Zalman Schachter who wrote a book called “From Aging to Saging.” I gave a copy to my dad when he retired. He was a bit freaked out about what he was going to do with his time. He wasn’t a golfer or recreater. He was thinking about getting into multi-level marketing, traveling. He ended up doing quite a bit with the Presbyterian Church – mostly because my mom was pretty involved. She was a watercolor painter and they were a team. She painted pictures, he matted, framed, hung and took down the shows. He didn’t really do much social change type work, but it was better than sitting around and watching sports on TV. I see myself still working. I’ve slowed down a bit, but I hope to be producing meaningful content for digital media, maybe helping organizations with fund raising.

What new things are your future older self learning and experiencing? I’m trying to keep up with the basic innovations and have always been on the leading edge of things. I used to be an early adopter of technology, but with things changing as rapidly as they are, I’ve been slowing down my consumerism. My dad never learned how to use a computer, although my mom did and was quite proficient at email. She didn’t make it through to social media, but I’m pretty sure she would be facebooking along with the best of us. Within the next 20 years, I’ll still be going strong keeping in touch with people the best I can.

What changes in your thinking and acting do you need to make in your current life in order to have the embodied old age you envisage?  I have to downsize. Get rid of stuff. I have started this and it’s a very tedious task. My sister has squatted on the family property that’s full of three households of junk. There’s no telling when that’s going to be purged. I don’t want to be stuck with the detritus of life. She still is clinging onto our parent’s past lives. It would be nice to get rid of all that property and my sister can get a life of her own.

If you invited your future older self over for lunch, what would you ask him? “Why the hell did you allow yourself to get so old?”