Views from my deathbed: Cohousing taught me it’s okay to ask for help

hospital monitors

My robot care givers – monitors that check out how I was doing at any moment. In the cover photo, those are 1 pound weights on my walker that I struggled with lifting. I wondered what I was going to do with my grandfather’s bamboo cane – use it of course. The rubber bands were for physical therapy.

Here it is February 1, 2019. Five years ago today I returned home from the hospital and rehab after six weeks on my deathbed, losing 30 pounds (20 percent of my body weight), and surviving two surgeries.

I’m glad that my visit from the Ghost of Christmases Yet to Come is behind me. It gave me a view of what the end of my life would be like and I better keep living it up while I can.

I made a documentary about my experience called “Aging Gratefully: The Power of Community” that’s available to watch.

During the ensuing five years, I’ve become Medicare-eligible and my memory isn’t the steel trap it used to be and I’ve learned to quit living in denial and ask for help.

My experience was so profound, I’m more than willing to talk to you or your community about the “why” part of cohousing.

When I moved into a senior cohousing community, I didn’t really know what that was about until I was unable to take care of myself. I knew I was aging, but didn’t think it would happen this fast!

In the cohousing community, we all own our own homes, and have agreed to be supportive of one another as good neighbors and chipping in on chores around the complex – it’s akin to running a family business and everyone lives on site.

Cohousing goes contrary to the American tenets of rugged individualism and self determination. In the non-cohousing world, asking for help is seen as a sign of weakness or a sign of superiority. In the cohousing world, it is neither. I have had to learn how to ask for help.

When I was in the hospital, I couldn’t walk and could barely lift my arms. I was fed gunk through a tube that flowed directly into my heart. I generally don’t speak in absolutes, but in this case, I had never felt so helpless in my life. I was left for dead until a laboratory at the University of Michigan figured out that I had an odd ball interstitial lung disease, some sort of fungal pneumonia, which was easily treatable with run-of-the-mill sulfa drugs. It’s the type of pneumonia AIDS patients and over-worked people like me get when the immune system gets beat to crap. Much of that was “out of network”, but I digress.

Go Wolverines!

I’m self-employed and have always been able to take care of all my assignments, except those that were due in January 2014. The last thing I thought I wanted was a lot of people knowing that I was flat on my back and unable to finish what I had committed to do.

As far as most people knew, I was fit as a fiddle. I needed help and I didn’t know how to ask for it, even in desperation.

I had a contract to travel around Wyoming and make tribute videos for the Wyoming Governor’s Art Award recipients. I liked the gig because it got me on the road and a chance to meet some interesting people. A friend and colleague, Michael,  stepped up to finish this job that entailed driving around Wyoming in the dead of winter.

There was a huge final report on a state of Wyoming film incentive grant for a movie project shot over the summer of 2013. Another friend and colleague, Barbara, finished counting all those beans for me.

Every year, I produce news coverage of the Boulder International Film Festival, which includes scheduling production crews. That turned out to be a bit of a debacle, the guy I lined up wasn’t as good at fast filmmaking and how to produce quick-turn-around news packages as I had hoped. Now, I’ve shared the responsibility with another guy, Glenn, who could easily pick up if I dropped out of sight.

I now come up with a  “plan B” for short term projects. Michael, Barbara and I collaborated on a short movie a few years back and want them to disassemble my business if I get too out of it. I still have to find someone to handle my baseball card collection.

When I returned home from rehab the day before Super Bowl XLVIII the community was very welcoming. I wheel chaired myself to the common house for the Super Bowl party, but had to leave at halftime since the tube sticking out of my abdomen started to leak (TMI).

My digestive system wasn’t quite ready for nachos. My septic ulcer repair wasn’t totally healed up.

For Broncos fans, it wasn’t much of a game, anyway, 43-8 Seattle.

I intellectually understood the “what” of cohousing, but didn’t get the “why” of cohousing until I was nearly dead.

Learning how to cram a cohousing  square peg into the rugged individualism round hole is by far the toughest aspect of living in what amounts to, a socialistic system where work is spread equally for the common good.

Asking for help is a constant in cohousing for the good of the whole.

We’re trying to keep the ship moving in the same direction and it’s tough to make that happen if crew members are off doing their own thing, don’t instinctively pick up any slack, or forget to perform a task – never ending reminder emails are a reality in a community of seniors with various stages of memory loss.

By the way, have you seen my keys?

In the outside world, people ask, to be polite, “Let me know if I can help.” In the cohousing world people ask, “What can I do to help you now?” being intentional about it. At my place, for example, we have a list of people who will contact caregivers, drive a neighbor to the doctor or hospital, at any moment. I look at it as paying it forward – You need a jump? I have cables. You’re in the hospital? I’ll stop by when I’m out today.

In my way of thinking, cohousing is very mission driven and best functions using the team approach. When I was in high school, there were the kids who had to be involved in every school activity and be on every page of the yearbook – drama club, 1,2,3,4; newspaper staff 1,2,3,4…

Clawing your way to the top in the outside world is the norm, but in cohousing, the norm is clawing your way to the middle. When I was younger, I was one of those chronic over achievers and have dialed that down.

My community has evolved to become more transparent. Every year, for example, everyone’s HOA dues are known. Intellectually, we strive for fairness, but any objective formula, while “equal” isn’t always subjectively “fair.”

We’re having very frank and open discussions about MONEY issues. It’s taken 10 years of community maturity, but everyone is letting loose of wanting control.

I don’t have much interest in Super Bowl LIII, but a soft spot for the Rams and three Broncos castoffs – Wade Phillips, Aqib Talib and CJ Anderson.

While I wouldn’t trade my stint in the ICU for anything, what I learned about myself was life changing, but I don’t recommend it as the best way to lose weight.

Retrofit Cohousing Communities: Can they solve the elder housing shortage?

pat nichols birthday

Growing up in the Cole Addition in Cheyenne, WY in the 1960s. This is my across the alley neighbor Pat Nichol’s birthday party.

NOTE: Author Alan O’Hashi presented a WebChat on this topic for the Cohousing Association of the US. Download a copy of his presentation notes by clicking on the image on the left or this link.

___________________________

I remember growing up in a neighborhood where the kids all hung around together and the reason our parents knew each other was because of bands kids running through one another’s houses. Garage doors were always open and lots of neighborhood birthday parties happened on the weekends.

We Baby Boomers, now well into our 60s and 70s, are trying to figure out how we will be cared for now that our kids are scattered all over the country with lives of their own, or in my case, no kids.

According to a 2015 US Aging Survey, 58 percent of seniors have lived in the same home for at least the past 20 years. Even though people ideally want to stay in one place, there continues to be anecdotal evidence about future uncertainty. While researching this story I asked in a facebook post, “Who will take care of you when you get old?” I was surprised at the 2,000+ engagements and 850 responses that ranged from “myself” to “nobody” to “I don’t know” to “maybe one of my kids” to “my cohousing neighbors.”

Cohousing intentionally tries to replicate neighborhood relationships that came about organically, by “building community, one neighborhood at a time.”

There’s a big unseen housing shortage that will become larger in the years to come. Did you know that 10,000 people turn 65 everyday? While many seniors, like myself,  are able to live independently, there will come a point when we will need assistance or be unable to take care of ourselves.

This growth is pressing seniors and their families to think differently and more broadly about a whole host of issues: housing, transportation, social services, cultural offerings, health and wellness programs, to name a few.

Life care managers, like gerontologists and social workers, believe there is a strong correlation between safe and affordable housing and keeping seniors healthy through accessible informal and formal care giving.

A longer life doesn’t always translate into a better quality of life. No one knows this better than the millions of adult children caring for their parents who struggle to remain in family homes and communities ill-designed for the challenges of aging. Those challenges include long travel distances, non-existent or limited relationships among parents and their children.

Historically, seniors aged in their homes for as long they could with support from family and informal caregivers, until they died or health conditions deteriorated to the point that hospital or nursing home care was necessary.

These data are now flipped. In his book “Being Mortal: Medicine and What Matters in the End” Atul Gawande observes that now, the vast majority of people die in the hospital or long term care facilities rather than at home.

golden girls

The “Golden Girls” were among the cooperative living trend setters – ABC

The circumstances of where, how, and with whom people grow old are changing. From “Golden Girls” roommate households to high-rise artist-centered apartments, Baby Boomers are redefining how they live out their lives — breaking down the old stereotypes and rules, and building new visions of great places to grow old, and doing it better living in community.

One such housing configuration is cohousing. I live in cohousing for people over 50. Cohousing communities consist of neighbors who decide to live together in their private homes and agree upon common values, share in some form of consensus decision-making, operate and maintain common spaces such as a common house where cohousers share meals and activities together.

What if this cohousing “secret sauce” is applied to other senior and multigenerational housing configurations?

Continuing Care Residential Communities (CCRC) are good for some. For decades, Continuing Care Retirement Communities (CCRCs) have offered older adults (usually age 65 and older) an innovative and independent lifestyle that differs from other housing and care options. CCRCs offer a living continuum  in which residents transition from independent to assisted to long-term care.

The CCRC model is appropriate for retrofit cohousing because cohousing can be the entry point to a CCRC. The main limitation of retrofitting an existing CCRC is one of control. CCRCs are typically managed “top-down” as opposed to resident directed.

Retrofit cohousing residents govern themselves and become accustomed to community living. That doesn’t mean giving up independence, but being collaborative among others with independent lives. While there would be changes in the cohort, the idea is that it would remain intact and repopulated with others attracted to the community lifestyle.

CCRCs allow seniors to convert home equity or other assets into a place to live and receive daily living services and health care that keeps monthly expenditures more stable – like a meal plan in the dorms. A CCRC isn’t for everybody.

The National Long Term Care Survey is a nationally-representative sample both of the community and of institutionalized populations and is longitudinal in that sample persons join the survey once they reach 65 years of age and stay in the survey until they either die or are lost to follow-up. The NLTCS data from 2004 are not up to date, but find that while CCRC residents are the oldest and sickest population, they have the highest incomes, with an average household income of $40,000-$45,000. Compare that to those in assisted or independent living who report average incomes of $24,000.

CCRCs are a tried and true lifestyle option for some seniors, particularly those with higher incomes and net worth, but what about everyone else?

alan wheel chair

My last day in rehab after six weeks in ICU and recovering from two surgeries in 2013.

Applying cohousing principles, relationships developed among neighbors and subsequent sharing of tasks and care for one another can help delay the need for other types of independent and assisted living.

Adapting existing housing configurations – senior or multigenerational – by adding the tenets of cohousing emulates what is provided in a CCRC:

  • Private residences and common areas;
  • A continuum of service, including food services, housekeeping, social and recreational outlets, transportation, and health-care services, as needed;
  • Housing rent or ownership that may utilize home equity to help keep monthly expenses lower

Buying into a CCRC is not cheap. Entrance fees range from about $20,000 to more than $500,000 or even $1,000,000, based on an area’s cost of living. This is clearly unaffordable to most people.

hospital monitors

Six weeks in the hospital and rehab and homeboubd for a mobth after. One day I was healthy, a couple months later I was on my death bed.

We’re all getting older every day. Unfortunately, for many young people say, under 50, the prospects of aging aren’t on their radar screens. It isn’t until the “Join AARP” membership cards start coming in the mail and phone calls from parents in the hospital announcing, “I fell down and can’t get up” that they begin to take notice.

Home living conditions have a huge impact on the health of seniors living with long-term illness and their abilities to live independently. Care managers and geriatricians are often called upon to give advice to families about where their aging family members who have developed illnesses or a disability can live, according to the Aging Life Care Association.

Seniors and their families now seek more information about the relationship between safe, affordable housing and health. At-risk older people who are on fixed incomes with no familial safety net are more likely to be living in non-decent rental or owner-occupied housing.

The 4th annual 2015 United States of Aging Survey, conducted by the National Association of Area Agencies on Aging (n4a), the National Council on Aging (NCOA) and UnitedHealthcare, examines senior perspectives on aging and what communities can do to better support an increasing, longer-living senior population. The survey included a nationally representative sample of 1,650 Americans 60 and older, and professionals who work closely with them. These data support a need for supportive and collaborative communities.

Financial concerns:

  • The top financial worries that keep seniors up at night are increasing costs of living, 28 percent and unexpected medical expenses, 24 percent.

Maintaining health:

  • Professionals and seniors agree that maintaining good health as they age as important. They named eating healthy, 91 percent and 72 percent, respectively; maintaining a positive attitude, 86 percent and 72 percent; and getting enough sleep, 79 percent and 67 percent.

Staying at home and independent:

  • When asked what concerns they have about living independently, 42 percent of seniors say they are most concerned about becoming a burden to others, 41 percent said experiencing memory loss and 34 percent said not being able to get out of the house and/or drive.

Community Support:

  • 59 percent of seniors say that young people today are less supportive of seniors than their own generation was in previous years, 24 percent see the same levels of support, and 12 percent say young people are more supportive of older adults;
  • 47 percent, (down from 54 percent in 2014 and 49 percent in 2013) and 37 percent of the professionals say their community is doing enough to prepare for the needs of retiring Baby Boomers.
alan shoveling poster

Cohousers share in the chores around the community.

Retrofit cohousing can fill the housing gap. The cohousing model originated in Denmark in the 1960s. Architects Katie McCamant and Chuck Durrett brought the concept to the United States in the 1980s. The legal structure is typically a Home Owners Association (HOA) or Housing Cooperative.

Most cohousing communities are multigenerational, but over time, become senior communities because of people who age in place. There are around 11 established senior-only cohousing communities and more in the forming stages. Most cohousing communities are new-build or adapted developments and some retrofits.

Research points to a variety of cohousing benefits. The most often mentioned benefits relate to reducing social isolation. The cohousing secret sauce provides for intentional socializing, neighborly support when under the weather, sharing chores, sharing expertise, and having neighbors who share similar interests.

Compared to the general population, cohousers are more likely to be a homeowner, highly educated, Democrat, White, female, and age 60 or older, according to the Cohousing Research Network.

Traditional cohousing communities may not represent the characteristics of a broader segment of the population that is interested in cohousing but unable to access, or would be interested if they knew about it. This is where retrofit cohousing can help fill the gap.

How a cohousing community gets started is like forming a club. A few strong advocates seek others to join the community development efforts. In addition to finding like-minded people who want to live together, they must also have the financial resources to invest in land, design and construction, patience to decide on countertops and landscaping and have the time to wait while all this happens. This ground-up process often takes three to five years or more with potential members coming and going.

The cohousing model can also be applied to more structured housing configurations such as existing CCRCs, stand-alone independent living communities, assisted living or long-term care facilities; and people living dispersed within a geographic area such as the Beacon Hill Village in Massachusetts.

The only assisted living facility I’ve heard about is one being planned by a life care manager in Gloucester, Massachusetts.

beacon hill village

Beacon Hill Village in Boston is a member-drive organization that provides services so members can lead active lives, while living in their own homes and neighborhoods.

Retrofit cohousing communities are more diverse. Data from a 2012 Cohousing Research Network study by Angela Sanguinetti compared the residents of retrofit cohousing communities (those that grow over time in existing residential developments) with the residents of traditional cohousing (new-build or adapted developments that start from scratch, involving a full group of members in the planning process who move in all at once).

When applying the tenets of cohousing, “retrofit” can also be a community of people who don’t live in the same proximity. Housing is housing, but the cohousing culture is what makes the community. The Beacon Hill Village is an existing dispersed community of 500 seniors who agree upon how to be active and supportive of one another rather than reliant on others to “take care” of them all the time. They provide neighborly support with one another and coordinate outside social and physical care giving when necessary.

The Beacon Hill approach would be appropriate to multigenerational communities as well. Since all are aging, it seems like people don’t get around to planning for their life care until it’s almost too late.

chung nyc coho

Jeddy and Cynthia created an accidental cohousing community in Flushing, NYC.

Residents of retrofit cohousing in one place include more young people, full-time students, renters, racial minorities, single householders, and households with fewer financial assets. An example, while not called “cohousing” is the case of a group of apartment dwellers in Flushing, New York City who became an accidental community.

Sanguinetti’s study finds that retrofit cohousing residents did not differ from traditional cohousing residents in terms of political affiliation or the level of education. The retrofit model may mitigate some barriers for a broader group of interested cohousers by being less resource-intensive.

The social support that cohousing offers may be beneficial for an aging population. Senior cohousing has received recent attention as a model to support well being, and aging in place through emotional support and activities of mutual assistance (e.g., doing errands, driving, cooking, or going for a walk with a neighbor), downsizing, and safety.

How does retrofit cohousing work? In a retrofit situation the community development steps are the same as for a traditional cohousing community. “Burning soul” advocates and other group members may or may not live in the same building or community. They may decide to move into the same apartment or condo complex, but would follow a typical cohousing development process such as these three steps that were identified by CoLiving Canada:

Feasibility study

  • Discuss and agree upon community values and perhaps, a higher purpose, which would fill the need to walk their community values talk while participating in service projects;
  • Whether you’re three or thirty people, come up with a name and “elevator speech” identifying the community. Referring to yourselves as a “bunch of housemates” doesn’t tell about your community story;
  • Community cohesiveness could be built around a higher purpose of community service that binds a community together.
  • Once you kick the can down the road a few blocks, check your state laws about homeowner association regulations. You will find they set up HOAs that do not mirror cohousing very well – lots of centralized power and control, lots of voting. Save this until later, because conforming cohousing declarations with state laws is a chore.

Develop budgets

  • There likely will be common expenses that relate to community activities, coordinating transportation, common meals, intra-community communication and a fee structure to pay for all or part.
  • Community values and mission are implemented through the budget by teams – overall steering team equivalent to a board of directores, social events, managing building and grounds, procesd and governance, finances and legal matters,
  • The entire community approves by consensus the budget or any action for that matter, and the steering team ratifies the action also by consensus.

Design and Construction

  • If you’re sharing a big house, there will be design issues about designating common spaces and storage. Some design and construction in retrofits may be necessary if you’re in an existing condo community or apartment building is adapted. This may include renovating an existing dwelling unit into a common space with a guest room and common kitchen which was the case at Boulder Creek cohousing in Colorado;
  • Identify resident needs, how the “site” functions – if it is in an existing physical development like a condo association, apartment complex, or households dispersed within a given boundary;
  • Determine what are considered “common spaces” which may not be literally common, but function in common. These may be in private homes for shared meals and meetings, civic spaces, churches, libraries

Looking for a few cohousing retrofit pioneers. There are plenty of individuals who are interested in cohousing. Some of you may have managed to form into group that has begun the traditional cohousing process but you’ve bumped into obstacles including lack of money, no suitable land available, professionals such as architects who are only willing to give so much upfront service, group members who can no longer wait for the community to get off the ground. There are well-documented war stories.

I want to prove the concept. I’m seeking one or more people, preferably in the Denver-area to organize a retrofit cohousing community and facilitate you through the process.

  • Maybe, you don’t need a place to live or have bumped into some community development obstacles, but want to create connections with other like-minded people as a hedge against loneliness and living in isolation;
  • Maybe you live in an apartment building and your neighbors are interested in a more collaborative lifestyle;
  • Maybe you are affiliated with an existing assisted living community and want to adopt appropriate cohousing principles

There are varying opinions about whether what I describe is actually cohousing, but regardless, I want to hear from you. Email adoecos@yahoo.com

In case you’re wondering about my interest in this topic, I became Medicare-eligible this year and live in the Silver Sage Village cohousing community in Boulder, Colorado.

What a long strange trip it still is – aging and the power of my cohousing community

Auntie Jeannie is standing on the right end next to my mother. Alison is sitting second from the right, Alison's sister Leslie is being held by Auntie Elsie.

Auntie Jeannie is standing on the right end next to my mother. Alison is sitting second from the right, Alison’s sister Leslie is being held by Auntie Elsie.

My 82 year old Uncle Tom fell after getting off a four-wheeler. He was in the hospital for a short period of time. My cousin Margo called to let me know Tom died. I stopped at the hospital and saw him and had a chance to catch up with my cousins. My condolences go out to Margo, Kathy and Bobbi – they are all pictured in the photo on the left.

Margo’s phone call reminded me about a story from a few years ago.

_______________________________

October 29, 2016 – I got a call from my cousin, Alison, yesterday. These days, whenever relatives call, there’s generally some sort of family emergency. This time, Alison told me her mother – my Auntie Jeannie – had passed away. She had a stroke while sleeping and didn’t wake up. My condolences go out to my cousins Alison and Leslie and her sisters Carol Lou and Janice.

I’ve been attending funerals lately. Last week, it was for Eastern Shoshone tribal elder and one of my mentors Starr Weed in Fort Washakie.

It was my first open casket wake. I don’t know what I expected, but it was solemn and heart breaking. One of Starr’s grandsons, Layha Spoonhunter, was one of my Wind River Tribal College film students. His class project was an oral history of Starr Weed. I felt for him and his mom, Wilma, who is married to my former boss, Harvey, and his aunt Elaine who organizes the Gift of the Waters Pageant in Thermopolis.

A month or so ago, my Uncle Rich died. He had quite a few home health care workers supporting him after he returned from the hospital. He was a 442nd war veteran and in Army Intelligence. He was too small in stature for combat. I also learned after he died, my Aunt Sadako was moved to an assisted living place in Cheyenne.

I live in the Silver Sage Village senior cohousing community in North Boulder. There have been murmurs about it, but just recently the community began discussing “aging in community” which has been on my mind quite a bit, lately.

I’m making a documentary movie about my and my neighbors’ experiences of growing old in cohousing and their thoughts about the future. I’m also helping produce a national conference on the topic that will be held next year May 19 to 21 in Salt Lake City.

My movie won’t be anything earth shattering, but hopefully will give others wanting to start up an intentional community some insight into what to expect. These discussions are about the first ones we’ve had in the five years I’ve been living at Silver Sage Village where the topic has been about something more substantive than maintaining the buildings.

A bunch of people are reading “Being Mortal” by a doctor named Atul Gawande. His basic premise is that modern medicine is good about keeping people alive, while not knowing when it’s time to allow us to die not in a hospital but at home.

Gawande says that in the past, 80 percent of people used to die at home and 20 percent died in a hospital or medical facility. Now that number is reversed with 80 percent dying in a hospital and 20 percent dying at home.

Back to Auntie Jeannie.

I also learned that at 77, she was one of the primary care givers to my Auntie Elsie, well into her 90s. A few months ago, she broke her hip and Jeannie got her settled into a rehab / hospice center as well as helping Sadako get settled into her assisted living apartment. I surmise that what happened was Uncle Rich’s home care workers also did more for Sadako than anyone realized.

I imagine with all this care giving Jeannie was a bit stressed out.

Elders providing care for other elders is becoming common place anymore and a problem.

I can see myself in that boat particularly since my immediate family is strewn all over the place with their own lives and issues and I have no kids.

Like in Jeannie’s case, the work takes more out of the care giver than the patient.

Cohousing is a way to spread some of the load.

Jeannie was married to my Uncle Jake who was the youngest son on my dad’s side that had 13 total kids. It was a very strong extended family and everything revolved around my grand parents house.

Mainly during the summers, everyone would gather various places in Cheyenne and along with the rest of the Japanese community. On Memorial Day there were big picnics and on the 4th of July we all went out to Jeannie’s parents who lived out in the country and blasted off fireworks.

Back then, all the cousins were close, and all the aunts and uncles were close but there was a big diaspora after the grand parents died. We all became adults, had our own lives and lost the closeness we shared as children. Social media has helped keep us connected, but it’s still not the same as it was.

How do more seniors get engaged as caregivers for one another?

I had a brush with death and had a visit from the Ghost of Christmases Yet to Come and got a glimpse into my future. What if I couldn’t walk, feed myself, or breathe on my own, flat on my back in a hospital bed?

I can tell you it was lonely.

The hospital was 20 miles away and the rehab place 40 miles away in Denver. I didn’t broadcast that I was laid up but a few neighbors and friends managed to find out and dropped by. I thought it would be a good time to catch up on some editing.

I didn’t realize how doped up I was. A guy can only watch so many “Pawn Stars” reruns before boredom sets in.

I’m happy that I got a second chance to do things differently the next time around. I am grateful to be living at a place like Silver Sage Village. At the urging of Diana Helzer, we sold a place nearby with too many stairs in favor of Silver Sage Village that is on the ground floor with no steps and is fully accessible.

I really didn’t know much of anything about cohousing but am lucky to have neighbors who helped out by bringing by food and helping Diana with some of the care giving like transport in the dead of winter.

The downside of living in cohousing is antithetical to any care giving.

There are many conflicts about the day – to – day management of the place that arise and escalate, some cause hard feelings, but that’s part of life anywhere and shows how fragile community living can be among a whole variety of personality types. The differences seem more pronounced since everyone also is trying to get along.

In my experience, those sorts of relationships have been more work related, but much of living in cohousing is work related and I’ve had to learn how to separate out my personal life here from my business life here.

When I returned to Silver Sage Village after six weeks of hospital and rehab stints, I don’t know how it happened, but neighbors brought by meals and offers of help. I don’t know if neighborliness can be “organized” but however it came about was greatly appreciated. That, along with the layout of the fully accessible condo, was important in my continuing recovery.

It takes a village to raise a child but also takes a village to move an elder towards the end of life.

I don’t expect my neighbors to help me into the shower, or wipe my butt, but I hope they’ll continue to mostly be around.

Gawande talks about the importance of hospice that helps a person be comfortable and provides ways to navigate life.

Do I want my friends and family to be hovering over me out of some sort of self serving sense of duty when I’m delirious and out of it? Is that quality time to be with someone at the last breath?

I’ve put myself into self-imposed hospice now while I still have plenty of breaths left and want to be comfortable in my house living life to it’s fullest. I’d rather be around family and friends while we still have our wits about us.

Here I thought I was out of the event planning business.

Look out for the “Getting the Band Back Together Tour” truckin’ into a town year you – the Cousins Reunion; Cheyenne, Gillette, Lander, Boulder and points in between.

What a long strange trip it still is!